Kindness… A Conversation

We are sitting at our oval dining table, pages of math homework strewn about, pencils at the ready to solve the next in the line of problems. But the problem at hand isn’t one of decimals or fractions, it’s how I can make sure our beautiful, kind and loving daughter continues to see herself as we see her. How can we preserve her mental health, her emotional health given what the world is serving her lately- unkindness, cruel words, stares and glares and even the craning of necks to gawk in her direction?

After a week of unkindness, she finally broke down and sobbed that she just wanted to be “normal.” She said she wished she didn’t have Treacher Collins so that kids would not stare and be mean, that she didn’t have to be different and deal with this anymore. Honestly, it’s fair for her to feel that way, heartbreaking and beyond hard to hear as a mother, but fair. What these kids don’t even realize is that she’s already trying to process her two surgeries coming up this summer, and that’s enough for her to manage. Why should she have to deal with unkindness when she puts so much good into the world. Why can’t other kids approach her with questions instead of glaring, smiles instead of stares, teasing instead of name calling?

I have always marveled at Landon’s confidence – standing up to nasty comments from mean boys at summer camps since she was 5, proudly sharing all about Treacher Collins or her hearing aids when asked innocently, and making friends wherever she goes. She has proudly told me through tears what she said in response to the mean comments she’s received, and then we moved through the discomfort, working hard not to hold any of the pain in her heart. But lately, it’s just harder. She’s older for one, more acutely aware of the world around her and with this age comes the teenage land of doubting oneself and seeking outside validation from peers. So what if a peer is the one that inflicts the pain? What if a friend calls you something related to your differences, and then you show up to the orthadontist’s office and a kid glares so rudely at you that you break. After all, it is all too much for one person to manage at any given time. We as parents manage through as we always do- reminding her of how loved she is, how incredible she is and how what was said or done doesn’t reflect anything about her but instead about the kid doing the rude behavior. We remind her in any way we can that we’re in this to carry the pain and sadness or frustration for her, and she can put it down at our feet. We try to be the light so she can see in the dark- but I often ask myself what else can I do?

I tend to glare back at the kids, sometimes blocking their view of Landon with my body, and roll my eyes as their moms gently and kindly hug them completely unaware of their kids’ affect on Landon. It’s gotten to the point, that if I see a boy or girl near her age I immediately stiffen and gently shield her with my body. And to be honest, if I see kids who exude privilege either in what they’re wearing or how they’re acting, I’m quickly on guard. Like in the case of the orthodontist- after one look at the boy I knew what was coming before it even happened. Maybe that’s not fair but I have yet to be wrong unfortunately. And so, I’m pulled back to this blog today to talk to my fellow parents- those I know and those I’ve yet to meet- to ask you again to please prioritize talking to your children about differences, what kindness looks and sounds like, and to help you understand how to engage with them about kids like Landon.

Imagine for a moment, fellow parents, that your own child is different. Maybe he or she has smaller ears; maybe he or she wears hearing aids that others can see; maybe he or she has a beautiful yet very differently shaped face; maybe he or she look like Auggie from Wonder or like Landon, or has any kind of special needs. And, what if while you and your child were out in public, most kids around you stares, points, and keeps on glaring not caring for a moment if they’re caught? What if others around you including some adults turn their faces down at your child, who is doing their best to stand up straight but shrinking as each minute goes on? What if your child goes to school and one of their friends calls them a name, mocking their hearing aids? What would you do? Would you threaten the kids around you who are glaring or pointing? Would you send emails or freak out at the other parents? Or would you plead with the parents in your community, the country, the world, to sit down and talk to their kids? Would you implore your community to teach what choosing kindness looks and sounds like? And then share that post or message 10x over.

Sitting around your dining table, here is how I imagine that conversation going. I imagine you do less of the talking, but instead guiding the conversation with questions, allowing them to realize some of the behavior themselves. You could ask: “have you ever seen any children who look different?” If not, “let’s imagine a child who looks different -their ears, eyes, face, maybe they’re in a wheelchair or have canes to help them walk.” “How should we interact with them or treat them?” “If you’re with them without parents, in a group maybe like camp, what should you say or do around them?”

I’ve asked Landon often about social media and my sharing messages like this, and how she feels about what I write when I do or share photos of us or her. She said that if anything we can put into the world can make even one kid or adult kinder, than it’s all worth it. That she hopes that she and any of her family can spread the message that kids like her are just that- kids, then great maybe people will see her as a kid first, different second or never. Maybe kids will notice that she likes and dislikes all the same things that other 11-year-old girls do. She loves Taylor, still likes Bluey, loves her family and friends dearly, and her school. She loves to read graphic novels and spend time drawing her own. She loves to play with toys with her little sister and video games with her big sister. And if you choose to hold kindness in your heart, you’ll see all these amazing things and more.

Make the time for the conversation, make the time to help them learn how to choose kindness every time.

TEN

Dear Landon,

Today marks TEN years circling the sun and with each season your light shines brighter. Early this morning I re-read an amazing poem “Welcome to Holland.” I was given this poem when you were tiny, only a couple months old, at your first speech school. As I held you on my chest, I read the story about a beautiful place full of wonder and unexpected beauty.

The story describes how mommas prepare for the birth of their children much like planning an extensive trip to another country. The momma would read about the country, learn the language, and pack her bags. But when she finally gets off the plane, the flight attendant welcomes her to a different country than she expected. It is a place of immense beauty, a place of wonder- full of tulips and windmills and incredible art. Instead of where she thought she was going, she went to Holland. It’s different than what she’d expected in the most marvelous of ways and teaches the everyone who sees it incredible things about themselves and the world through its differences.

You are like Holland, my girl. You are this miraculous wonder that filled our hearts with beauty and love we never knew before that morning a decade ago. You are tremendously talented – with how you love, in creating friendships, with seeing the best in people and in your strength. In this past year, you’ve made the intentional choice to share more of your story and what makes you awesome with the world so that others might choose to be kinder or see themselves in you.

You have a fantastic imagination and create vivid spaces for your collection of dragons and dinosaurs to live. You live for the adventure- swinging, climbing, back bending, lizard capturing and bird feather hunting. You are one amazing sister- teaching, playing, swinging, and patiently allowing your sisters to be all of themselves even if they are both loud 😊. You love your parents deeply for each of our unique selves and make blending easy. You are love, my bug. You are my life. I love you so much and marvel at what a decade of life has been like as your mother.

With all that I am, love mommy

Top ten children’s books about kindness

In experiencing and confidently handling too many rude conversations with other kids on her hearing aids or ears, Landon asked me about books we could recommend to other kids to read. She wondered if they read these books at home, if they’d be nicer to her and others just like her in the future. “Maybe they’d learn kindness or how to ask me questions in a kind way?”

So we went to our local Barnes and Noble and found only a few which was a great start but eye opening that we have more work to do at the larger outlet. We then read online posts and samples of books from online bookstores, went to a local small bookstore we love on King, read trusted recommendations from people we know and love, and then made a pact to try to write our own this year (!!!).

Until that time, we wanted to share our recommendations for books that teach kindness, inclusion, acceptance and celebration of differences, as well as a few about hearing loss since that’s a very minor category still. These span multiple age groups since we have three very different ages in our own house, and we also tried to also include smaller bookstores or minority owned bookstores from where to order them.

LANDON AND MOMMA’S TOP TEN LIST OF BOOKS ABOUT KINDNESS

  1. The World Needs More Purple People by Kristen Bell and Benjamin Hart- Landon’s favorite book so far and written by my ultimate girl/mom crush of all time Kristen Bell ( a win win here)

2. Just Ask! Be Different, Be Brave, Be You by Sonia Sotomayor

3. Be Kind by Pat Zietlow Miller

4. Kindness is My Superpower: A children’s Book About Empathy, Kindness and Compassion by Alicia Ortego 

5. Mila Gets Her Super Ears by Ashley Machovec

6. I am Human by Susan Verde

7. Princess Lizzie Wears Hearing Aids by Tosombra Kimes

8. Inside Out and Back Again by Thanhhà Lai

9. The Hundred Dresses by Eleanor Estes

10. The One and Only Ivan by Katherine Applegate

“What’s Wrong with Your Face?”

(written with Landon’s blessing)

“What’s wrong with your face?” This is the question a boy posed to Landon this week at camp on their first day. The first day of summer break, time for carefree fun with her friends at a local lacrosse camp. Time for her to just be a kid and revel in this new sport she’s loving. To lounge in the grass in between drills, giggling with friends at absurd things like all 9 year olds at summer camp. She should only be concerned with what kind of ice cream to get or how fast she wants to run during sharks and minnows. But instead, this is how camp began.

Landon responded to him with “Nothing! Ever heard of Treacher Collins? No? Well I have that.” This is our girl, in this big sometimes painful world, being as confident as possible as she stood up for herself. And now that some of my instinctual and visceral rage has subsided, I’m here to ask something of my fellow parents.

It feels likely that his family probably hasn’t had the discussion about people living with differences, how to handle himself, or what kindness looks and sounds like. He’s probably not been asked to read Wonder or any of the amazing childrens books about celebrating differences. So, fellow moms and dads, we need to find a way to talk earnestly and often with our children about how to respond in kindness to others who are beautifully different. These differences can be external or internal. You can see the uniqueness in their beautiful faces or bodies, or notice them in behavior.

You, can find the words, I just know it, to guide them through real life examples of what kind questions sound like, how to include others, and treat them like any other kid. Landon loves questions- she’s proud to explain her hearing aids, or happy to just skip it and be accepted like any kid. You can even start young and read “Just Ask” by Sonia Sotomayer. Point is, make the effort, lean into these discussions, be uncomfortable together to find your way through the conversations. And I promise to control myself and not go all Leslie Mann from This is 40 on this kid if I meet him tomorrow at pick up. 😬❤️ #treachercollins #treachercollinssyndrome #kindiscool

National Microtia Awareness Day by Landon

Last night Eric reminded us that today is National Microtia Day. Every year, Landon gets so excited there’s a day to celebrate her amazing ears, but this year she wanted to share something with her sweet friends and classmates and teachers about this special day.

Here is what we wrote… “Today is National Microtia Day. Microtia – pronounced “my-crow-shuh” – literally means small ear! There are almost 36,000 people living in our country with Microtia. It affects the outside of the ear and someone can have it on one ear or both! People with Microtia have it when they are born and most of us wear hearing aids like mine. They are called Bahas and I think they are awesome. I have Microtia because I also have something called Treacher Collins. But other kids might just have Microtia. Kids with Microtia are the same as me- with super cool ears. I love my tiny ears and my bahas. Thanks for letting me tell you about Microtia!”

Thank you @earcommunity for creating this day where we can celebrate together and teach our community about our differences and celebrate these amazing ears. And thank you @thecooperschool for providing a community where she can be herself wants to share her story. 🥲❤️ #nationalmicrotiaawarenessday

NINE

Happy 9thhh birthday to my one and only bug. I say this every year, and every year it’s even more true… you are made of pure sunshine my dear Landon. Lighting up every room you’re in, I hear it from teachers and friends alike. You lead with kindness, gentleness, curiosity and are fabulously silly. One of the many things of which I am proud is how inclusive you are and how you share your light with everyone.

In making me a mommy – you taught me what real love is- and have made me an infinitely better person. I’ll always try to be more like you- gentle, genuinely sweet, full of love for all animals big and cute and tiny and gross 😉. I can’t believe it’s been nine years since that early early morning when the world changed forever. I would never have imagined I could love someone so much until that day. Cheers to endless Lego playing, Spirit watching, pool swimming, twist dancing and now skateboard riding. I love you so so much. 💕💕💕💕💕💗